Sunday, April 22, 2012

" well, i'm a runnin' down the road, try'n to loosen my load-..... Don't let the sound of your own wheels make you crazy. lighten up while you still can, don't even try to understand, just find a place to make your stand, and take it easy. We may lose and we may win, though we may never be here again.... to take it easy." Take it easy, by the Eagles.

i think that the relationship between you and your doctor, in this case, endocrinologist, is like a good marriage. there must be compromise. i told you all last time, that my doctor decreased my levoxyl dose, from 150mcg down to 137mcg. i had a very hard time with that reduction! i worked two evenings last week, and by the second evening i knew that i was in trouble. i could not focus very well, mentally as well as focusing  my eyes. i actually had blurred vision.  this happened about 7:30pm. when i work the evening shift, i work from 12 to 9pm. so i had an hour and a half to try to keep things together, and a 30 minute drive home after that. i knew that something had to give!

i called my endo the next day, and left a message with her nurse. i did not hear anything until the next day. i had asked that if my dose could not be increased back up to the 150mcg every day, could i at least take the 150mcg two days a week? i guess she took a day to think about things. i could not blame her for that. the next day the nurse called me back and said that yes, i could take the 150mcg two days a week. YIPEE!! i chose mondays and fridays for two reasons. one being that it sort of breaks up the week as evenly as possible, and reason two being that mondays and fridays are our busiest days at work. i have to be able to focus at my job!

it is a little early to tell, but i think that maybe this will work out for me. i took my "first" 150mcg dose of levoxyl this past friday, and although i have had bronchitis for the past few days, i felt that i had more energy and i did not feel as "fuzzy". fuzzy is o.k. if you are a stuffed animal, but not if you are a person and are trying to do a job where you could actually make a mistake that, well, might hurt someone. it is so hard for anyone else to understand, a normal person, you know a person that has not lost their "butterfly", what a thyroid patient goes through. just a small change in your thyroid dosage and here we go again. all aboard the thyroid-less roller coaster ride. it really feels like i am on a roller coaster- i get waves of energy, then fatigue, then maybe a little energy before the long fatigue stretch. the problem is, i am not at an amusement park, the ride never ends, and somehow it keeps changing along the way. hair loss, no hair loss, concentration problems, etc. people who do not have a thyroid problem think that we all  just  take a tablet and everything is just fine. no problems, right? although i have empathy for those patients dealing with a heart condition, or diabetes, or high blood pressure, i will admit that i do not fully understand what they are going through. this helps me keep things in perspective when someone says something stupid to me. you know, like " you do not really need your thyroid, do you?". or, the worst one, the one that made steam come out both of my ears was from a physician. she told a patient that she should take this particular medication. the patient was hesitant, because she had read the side effects and one of them happened to be thyroid cancer. she told her doctor that she was not going to take this medication because of that. her doctor said, i swear this is true and these are her exact words, "WHY NOT, IT'S ONLY THYROID CANCER?!" 

this made me even more thankful for my endo, and the fact that she was willing to compromise with me on my levoxyl dose. it seems like an endless battle, and endless thyroid-less roller coaster ride, for those of us who have to deal with thyroid/parathyroid issues. all i can tell you is to just keep trying to figure out what is best for you. i hope that you are able to talk to your doctor, and work out something that is agreeable to both of you. oh, and also take it easy.

1 comment:

  1. I go through the same thing with the burst of energy (cleaned my house, rearranged my living room, and mowed the yard two weeks ago) to feeling like I can't even put one foot in front of the other.

    I have to tell you that physician's words just gave me chills. I gurantee you that physician would never utter those words again if he or she ever got thyroid cancer.