whew, the sun is out, the storms are over( for the moment), i am back on the computer, and my three month house remodeling project is almost over!! what a beautiful day. this is also vacation week for me. i was supposed to spend it in the hospital, getting my full body scan. as some of you might be aware of, thyrogen injection is on backorder from the manufacturer. it is supposed to be available sometime in june. "the best laid plans of mice and men" as they say. i will probably get my scan sometime in july. my new doctor requires that her patients be on the LID for four weeks. FOUR WEEKS!! well, i should be able to easily shed the 20 pounds that i want to lose. ( no joke) i had a hard time being on it for two weeks last time. the author of my LID cookbook, Noreen Gilletz, says that there is no reason to be on the LID for more than two weeks. does this mean that my new doctor is a sadist? i am not sure, and i should have asked her why four and not the usual two. i am going to ( since i now have some time) inquire about this and get back to you with her answer..
also, she uses the I-123 not the I-131 for the tracer dose. that is not going to work for me( she does not know this yet- i will mention it when i call her nurse this week). i did some checking, and i found out that the LIQUID I-123 that she uses has sulfite preservatives. i am highly allergic to this-anaphylactic allergic, so i can not use this. i will have to get the I-123 capsule( if there is one) or the I-131 capsule. i have had the I-131 capsule before- both the tracer dose for a scan, and the much, much larger treatment dose. i did fine with that one. i had listed on my records that i was allergic to all sulfite preservatives, but no one caught this. good thing i am diligent in checking ingredients in foods and medicines that i take. just another example of taking responsibility for my health care issues. really,i do not expect anyone to take care of this for me- it is an unusual allergy. however, one time i had a cat scan done, and the radiologist noticed that i had a sulfite allergy and changed the contrast medium that i had to drink to one that was sulfite free. i was impressed, but this is an exception, i am afraid.
on a lighter note, i get to go to zumba( if my knee holds out!) for two, possibly three times this week!! yeah. i also have to admit that i bought a pair of zumba pants. i was trying not to, but i decided to give it a try. well, they look cute, but run a little small( really, i am not just saying that!). and the disturbing thing to me is that they come too far below my belly button. i guess by this statement, you can tell that i am an old lady! i promise that i do not wear "mom jeans"- my daughter fixed that problem for me a few years ago, but i just do not like anything too low. we have two guys in our class, and well, i was afraid that they would stand behind me in class and that i would accidentally moon them or something.i got up my nerve and wore them to class last time. i unsnapped the flippy,floppy streamers( too much competition with my belly scarf- i am NOT giving up wearing that!). i was feeling pretty cool until we started to do some "bending over" moves. i was a little too anxious, even though the guys were in front of me! next time, i am going to wear my boring, sort of old lady, exercise pants i purchased a while ago from LL bean. they work, but they are not cool like the zumba pants. . maybe, after i have been on the LID for a while, i will get up my nerve and try my fancy zumba pants again.
I'm writing about my journey through thyroid cancer and beyond. I'm going to try to incorporate humor and positive self-reflection in an attempt to help myself heal and perhaps help others deal with this situation.Disclaimer: this site is for informational purposes only. this is not a substitute for seeing your health care provider. I am not responsible for any injury,loss or damage that allegedly arises from any information i publish in my blog.
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karen if you can, would you please email me at:dreamfields4ever@aol.com? i would like to as you a question. thanks!
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ReplyDeleteBea, I can't believe you'd be told you have to do that sucky diet for 4 weeks! That seems really cruel. I"ll be you drop some weight, unless they take you off your meds as well, they won't do that, will they? My oncologist thinks that method of LID & body scan is old fashioned, and prefers the thyrogen & blood test but I've read that it's not as conclusive as what you'll be doing. Ugh.
ReplyDeleteMet a woman today w/a thyroid scar w/another scar below her chin from a recent salivary gland removal. Same spot where mine had acted up for several months. She has the same dr I have & has gained tons of weight and is quitting her job this week because of exhaustion. Very sad. Feels like the dr doesn't listen and won't give her a stronger dose.
Hope you're enjoying your summer. Let us know when you start your LID.